Gus is doing well. The latest news, this past week is his great progress.
Physically, Gus is doing more and more on his own. He is rolling over when he wants to (from his belly to his back) and learning to play more with toys. He is making more of an effort to hit the toys and activate them and enjoys the noise he makes.

His overall muscle tone is improved, more and more like a normal baby (which means he isn't too stiff or too relaxed). He is strong but we are working at home on exercises that encourage more movement (rolling more and crawling).

Swallowing is still difficult but getting better. The front of his mouth responds quickly (and he loves the taste of the food) but the back of his mouth still gags often.

Mentally, Gus is definitely doing better. He is understanding more of what is happening around him. He is smiling and laughing more and more in response to us just talking to him or picking him up. He is very attentive to whether or not we are around and instantly calms down if we just talk to him.
Medications are being lowered again this week. The doctor was very impressed with the work Fergus is doing (it is obviously him, not the medications doing the work) so he is dropping them lower and lower. We are thrilled. The hope in knowing that our son is doing so well, despite all of the odds predicted against him has given us wings this week.

Thank you for continuing to love us through your prayers and support, esther