No Place Like Home

I'm writing through a few tears that just won't stop. This past week we've been running between home and Ranken Jordan, getting ready to take Fergus home. I've cried many times with joy, thinking about him at home but the day finally arrived yesterday. The joy of bringing a child home is like no other. I was elated all day yesterday and then, after we settled him in and unpacked all of his medications, feeding 'stuff', and other miscellaneous things, both Matt and I felt the exhaustion hit us from the past few months. We've been waiting for this day.

Last night was a reminder of all of the work the nurses have been doing for him on a daily basis - it's a lot. He didn't sleep well and kept Matthew and I up most of the night, but overall didn't seem too discontented: home is a lot quieter than the hospital and he knows us. He loves to be rocked and the kids have already helped out with taking care of him. The kids love to make him happy. In this picture, Ian is playing with him while his feeding tube is going. Fergus has started this past week to really enjoy being played with. He still loves looking at books, having us read to him, and watching things move slowly (like leaves on a tree, or a ribbon on a balloon) but now, he likes for us to use stuffed animals to make noise or touch him.

Thank you for all that you have done for us. We would not be able to move ahead like we have without you. God is gracious to us and has shown us faithful mercy and love through you.

Please continue to pray for his ability to move around. He gets bored and frustrated not moving around and we try to encourage him to move more by keeping him on his belly on the floor (he can move his arms and legs a little).

I'm heading back to talk to the nurse that will oversee our home care. Thank you for all that you have done for us.

with more gratefulness than can be expressed, esther