Friday, April 3, 2009

isolation

Today, Matt and I walked into the PICU and were surprised - Fergus is put into contact isolation. He possibly has a bacteria that easily spreads but is common with people who are on antibiotics for a long time. In order to go visit him, we put on new gowns and gloves each time. They should know later on today, after the lab work is done, why he has very loose, watery stools. They also started him on a new medication that helps to relax his muscles. After the first small dose I held him and he relaxed enough to even let his legs bend a bit.

St. John's Hospital here in Springfield has been excellent. The doctors and nurses are amazingly kind and skilled. Unfortunately, the hospital here does not offer rehabilitation services. The place they want to send him is Ranken Jordan in St. Louis. It has a good reputation for working with children with brain damage. Today we were told that if it will be a while longer for Fergus to get into Ranken Jordan, they will look elsewhere because he needs therapy as soon as possible.

We hope to have our children with us soon. Matt and I both feel the need to be together as a family again. Thanks to the Ronald McDonald House, we have a place to take them and be with them. We don't know all of the details for working this out but we'll let you know as soon as we can.

Please pray for:
- muscle relaxation
- full restoration
- full health
- his tongue to heal (he bit hard on it earlier, possibly during a seizure and I just saw it today - it looks almost forked)
- recognition of his mom and dad

Your prayers are a lifeline for us. thanks, esther

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~debbie reagan

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